A common theme I see among many of us parents who have a child with Down syndrome is a sense of guilt for being upset at receiving the diagnosis, at having these incorrect and stereotypical beliefs of what our child's future would look like. I'm guilty of this too. Then today, after reading a post … Continue reading Why do we feel guilty?
2019 has come in with a big boom. At the end of January, my uncle passed away very unexpectedly. That weekend, my parents were on their way out of state to attend his funeral. They reached just beyond the half way point when they were in a very serious car accident and were seriously injured … Continue reading Daycare in a hurry
It has been a busy month already for us! Early last week, Mary had her one year follow up with Cardiology. She had an EKG done and then we met with the cardiologist and his two doctors-in-training. They each took turns listening to her heart and all heard the same thing: a healthy heart. As … Continue reading Follow-ups and Surgery
We are officially in 2019 and I realized I did not do a 2018 in review pos (I blame the craziness and busyness of the holidays!). Instead, I want to do a look into 2019 and what our plans and goals are as a family. The big one this year is a wedding…our wedding! This … Continue reading Looking ahead in 2019
Not long ago, I was introduced to The Lucky Few Podcast through one of the Down Syndrome groups I am in. They just finished season 2. I found it really interesting and wanted to share my review with you. The Lucky Few hosts are a group of 3 moms who each have a child (or … Continue reading The Lucky Few Podcast
We just had our one year follow up at the Down syndrome center. I know, Mary is nearly 14 months but when a member of the team is on maternity leave, things get postponed a bit. Pediatrcian: We started our visit off with the pediatrician. Overall, she is a healthy girl. She is having ear … Continue reading Down Syndrome Center Visit – 1 year Follow-up
There really is no manual on what to do when you find out your child has special needs. Every special-needs path is different. Some will be more intense than others. But I feel that there are some commonalities that many of us experience and can do to help make it just a little bit easier. … Continue reading What to do now? Down syndrome