Seven years ago today, I was in the hospital giving birth to Alex. Today, he is proudly wearing his dinosaur 7 birthday shirt and talking about the dinosaur exhibit we are seeing this weekend. Tonight we will go out to dinner at his choice of restaurant. Today, we celebrate 7 years of this amazing boy. … Continue reading Seven years old! Where does the time go?
Today marks one year since we began this blog. One year (and two days) since we received Mary’s Down syndrome diagnosis. One year since our world turned upside down for us….again. One year since we decided to share our journey with everyone. What a year it has been too! Mary was born, a wonderful healthy … Continue reading One Year!
My loved one just found out their child has special needs. What can I do/say? What should I not do/say? First off, kudos to you for wanting to be the best support person you can be for your loved one. Finding out your child has special needs can be hard news to take. Feeling helpless … Continue reading Supporting a new parent
Mary had an audiology check-up recently. Since she had recently turned 6 months old, it was time for several major check-ups (one year will be the big one). The location was familiar to me since it was in the same building, even the same floor, as where Alex had his speech therapy prior to starting … Continue reading Audiology Checkup-6 months
We recently had the 6 month checkup at the Thomas Center for Down Syndrome. This time, we met with the large team. This included a Physical Therapist, Occupation Therapist, Speech Therapist, Nutritionist, and Pediatrician. Three of the team members were the same people we met at our first visit . The Physical Therapist and Nutritionist … Continue reading Down Syndrome Center: visit 2
I like organization. I like being able to know where to find what information I need quickly, especially important information. This has become important with my children and their special needs. I have found the easiest way to organize it all for me is to use binders. I have a lot of binders for a … Continue reading Binder Organization – Medical Binder for Down syndrome
Mary is 6 months old! Ok, closer to 6 ½ months, but I wanted to wait after her 6 month checkup to update everyone. We are half way to a year old. Time has flown so fast. Her head control is great and her neck strength is getting better each week. We are working on rolling and … Continue reading 6 months old!