A common theme I see among many of us parents who have a child with Down syndrome is a sense of guilt for being upset at receiving the diagnosis, at having these incorrect and stereotypical beliefs of what our child's future would look like. I'm guilty of this too. Then today, after reading a post … Continue reading Why do we feel guilty?

It has been a busy month already for us! Early last week, Mary had her one year follow up with Cardiology. She had an EKG done and then we met with the cardiologist and his two doctors-in-training. They each took turns listening to her heart and all heard the same thing: a healthy heart. As … Continue reading Follow-ups and Surgery

Not long ago, I was introduced to The Lucky Few Podcast through one of the Down Syndrome groups I am in. They just finished season 2. I found it really interesting and wanted to share my review with you. The Lucky Few hosts are a group of 3 moms who each have a child (or … Continue reading The Lucky Few Podcast

We just had our one year follow up at the Down syndrome center. I know, Mary is nearly 14 months but when a member of the team is on maternity leave, things get postponed a bit. Pediatrcian: We started our visit off with the pediatrician. Overall, she is a healthy girl. She is having ear … Continue reading Down Syndrome Center Visit – 1 year Follow-up

There really is no manual on what to do when you find out your child has special needs. Every special-needs path is different. Some will be more intense than others. But I feel that there are some commonalities that many of us experience and can do to help make it just a little bit easier. … Continue reading What to do now? Down syndrome

Mary had an audiology check-up recently. Since she had recently turned 6 months old, it was time for several major check-ups (one year will be the big one). The location was familiar to me since it was in the same building, even the same floor, as where Alex had his speech therapy prior to starting … Continue reading Audiology Checkup-6 months

We recently had the 6 month checkup at the Thomas Center for Down Syndrome. This time, we met with the large team. This included a Physical Therapist, Occupation Therapist, Speech Therapist, Nutritionist, and Pediatrician. Three of the team members were the same people we met at our first visit . The Physical Therapist and Nutritionist … Continue reading Down Syndrome Center: visit 2