We recently had the 6 month checkup at the Thomas Center for Down Syndrome. This time, we met with the large team. This included a Physical Therapist, Occupation Therapist, Speech Therapist, Nutritionist, and Pediatrician. Three of the team members were the same people we met at our first visit . The Physical Therapist and Nutritionist … Continue reading Down Syndrome Center: visit 2
I like organization. I like being able to know where to find what information I need quickly, especially important information. This has become important with my children and their special needs. I have found the easiest way to organize it all for me is to use binders. I have a lot of binders for a … Continue reading Binder Organization – Medical Binder for Down syndrome
Mary is 6 months old! Ok, closer to 6 ½ months, but I wanted to wait after her 6 month checkup to update everyone. We are half way to a year old. Time has flown so fast. Her head control is great and her neck strength is getting better each week. We are working on rolling and … Continue reading 6 months old!
What's the best piece of advice you received after learning of your child's diagnosis? This was a topic shared by a fellow blogger and it made me think. What WAS the best advice I received? I can’t think of any single one piece of advice because there were several great pieces as I processed everything. … Continue reading Your best piece of advice
Mary is four months old! What a month it has been! We started working with the Early Intervention group here and have had a few sessions with them. We are getting some great advice and the work with Mary is showing some great progress already. I will be doing a post on this soon. Her … Continue reading Four months old!
Mary is now three months old! She is getting stronger every day! While she has great head control, she still has low muscle tone so keeping it upright is still work. It is noticeable less floppy though. We are doing lots of tummy time to help with this, holding down her hips as her occupational … Continue reading Three months old!
Today was our first visit with the group at the Thomas Center for Down Syndrome. I admit, I was feeling a bit anxious about it. What would they say about Mary and her development? What have we been doing wrong? Right? So many unknowns for me and that never helps. The team consisted of a … Continue reading Down Syndrome Center: visit 1
On Thursday, Mary had her cardiology follow-up. It started with an EKG and she did great! No cries for anything as they put the pads on her. The hard part was keeping the clips on the pads because she kept trying to play with them and grabbing them. We ended up handing her a toy … Continue reading Cardiology, Chiropractor and more
Mary is now a month old! Time has flown by so fast. Every day is a new adventure for her. You can tell that she is discovering more of the world around her. She will look around with wide eyes at the colors and faces around her. She loves being held, especially chest to chest. … Continue reading One month old!
Mary is now a week old. Amazing how fast time goes. She had her first check-up already. She is down to 7lbs 9oz which is actually great. I was so worried that she would have lost more because of the feeding issues we were having in the beginning. Luckily, her latch/suction is good and strong. … Continue reading A week into this