What's the best piece of advice you received after learning of your child's diagnosis? This was a topic shared by a fellow blogger and it made me think. What WAS the best advice I received? I can’t think of any single one piece of advice because there were several great pieces as I processed everything. … Continue reading Your best piece of advice
It’s that time of year again: Alex’s IEP Renewal. IEPs need to be renewed before the one year mark. Last year, it was early May. This year, it was late March. We did 2 renewals for his Preschool IEP. However, his Kindergarten IEP had to be a new one due to the differences between a … Continue reading IEP Renewal Time
It has been 5 months since Mary joined the world and Alex absolutely adores her still. He loves that she smiles at him and holds his finger with her little hand. If she gets upset, he will rush over and try to calm her down saying “Shh Mary, I’m here. It’s me, your big brother.” … Continue reading Adjustments in the Family
Down syndrome, or Trisomy 21, is a result of 3 copies of the 21st chromosome instead of the typical 2. Trisomy 21 happens prior conception. There is no way to prevent it. The cause of this is still unknown Down syndrome is not an illness or a disease. It is a condition or syndrome. You … Continue reading 21 Facts about Down syndrome for Down Syndrome Awareness Day
Mary is four months old! What a month it has been! We started working with the Early Intervention group here and have had a few sessions with them. We are getting some great advice and the work with Mary is showing some great progress already. I will be doing a post on this soon. Her … Continue reading Four months old!
Mary is now three months old! She is getting stronger every day! While she has great head control, she still has low muscle tone so keeping it upright is still work. It is noticeable less floppy though. We are doing lots of tummy time to help with this, holding down her hips as her occupational … Continue reading Three months old!
Today was our first visit with the group at the Thomas Center for Down Syndrome. I admit, I was feeling a bit anxious about it. What would they say about Mary and her development? What have we been doing wrong? Right? So many unknowns for me and that never helps. The team consisted of a … Continue reading Down Syndrome Center: visit 1