We recently had the 6 month checkup at the Thomas Center for Down Syndrome. This time, we met with the large team. This included a Physical Therapist, Occupation Therapist, Speech Therapist, Nutritionist, and Pediatrician. Three of the team members were the same people we met at our first visit . The Physical Therapist and Nutritionist … Continue reading Down Syndrome Center: visit 2
I like organization. I like being able to know where to find what information I need quickly, especially important information. This has become important with my children and their special needs. I have found the easiest way to organize it all for me is to use binders. I have a lot of binders for a … Continue reading Binder Organization – Medical Binder for Down syndrome
Mary is 6 months old! Ok, closer to 6 ½ months, but I wanted to wait after her 6 month checkup to update everyone. We are half way to a year old. Time has flown so fast. Her head control is great and her neck strength is getting better each week. We are working on rolling and … Continue reading 6 months old!
What's the best piece of advice you received after learning of your child's diagnosis? This was a topic shared by a fellow blogger and it made me think. What WAS the best advice I received? I can’t think of any single one piece of advice because there were several great pieces as I processed everything. … Continue reading Your best piece of advice
It’s that time of year again: Alex’s IEP Renewal. IEPs need to be renewed before the one year mark. Last year, it was early May. This year, it was late March. We did 2 renewals for his Preschool IEP. However, his Kindergarten IEP had to be a new one due to the differences between a … Continue reading IEP Renewal Time
It has been 5 months since Mary joined the world and Alex absolutely adores her still. He loves that she smiles at him and holds his finger with her little hand. If she gets upset, he will rush over and try to calm her down saying “Shh Mary, I’m here. It’s me, your big brother.” … Continue reading Adjustments in the Family
Down syndrome, or Trisomy 21, is a result of 3 copies of the 21st chromosome instead of the typical 2. Trisomy 21 happens prior conception. There is no way to prevent it. The cause of this is still unknown Down syndrome is not an illness or a disease. It is a condition or syndrome. You … Continue reading 21 Facts about Down syndrome for Down Syndrome Awareness Day